The New Zealand Lysosomal Storage Diseases Trust — Health Charity in Lower Hutt
The New Zealand Lysosomal Storage Diseases Trust is a deregistered Trust charity in the Health sector, based in Lower Hutt, Lower Hutt. This organisation also provides funding to other charities. Annual revenue: $0.0M NZD. Financial data as at June 2020.
Mission: To improve contacts information and support among people affected by Lysosomal Storage Diseases, and their families within New Zealand, To support and advocate for accelerated research into the causes and treatments of Lysosomal storage diseases, and or improvements to the clinical care of affected people. To build links with overseas families, support groups to support knowledge about theses diseases and advance the objectives of the trust. To promote education of families, clinicians and others involved in the care of affected people and their families. To support and advocate for the establishment of medical testing screening, other specialist services.
- Registration Number
- CC24962
- Charity Type
- Trust
- Registration Date
- 2008-05-26
- Status
- Deregistered (2021-03-31)
- Sector
- Health
- Location
- Lower Hutt, Lower Hutt
- john.forman@xtra.co.nz
- Funder Status
- Grant-making charity (trust)
- Data as at
- June 2020
Financial Summary
- Total Revenue
- $0.0M NZD
- Total Expenses
- $0.0M NZD
- Total Assets
- $0.0M NZD
- Net Assets
- $0.0M NZD
- Reserve Months
- 0.0 months of operating expenses
- Volunteers
- 0
- Financial Year End
- 2020-06-30
Financial History
| Year | Revenue | Expenses | Net Assets |
|---|---|---|---|
| 2020 | $0.0M | $0.0M | $0.0M |
| 2019 | $0.2M | $0.2M | $0.1M |
| 2018 | $0.0M | $0.0M | $0.0M |
| 2017 | $0.1M | $0.1M | $0.0M |
| 2016 | $0.1M | $0.1M | $0.1M |
| 2015 | $0.0M | $0.1M | $0.1M |
| 2014 | $0.1M | $0.1M | $0.1M |
| 2013 | $0.0M | $0.1M | $0.1M |
| 2012 | $0.1M | $0.1M | - |
| 2011 | $0.1M | $0.1M | $0.1M |
Board Members and Officers
Current Officers (0)
| Name | Role | Appointed |
|---|
Former Officers (7)
- Paul Marquardt — Trustee
- Nadia Mitchell — Trustee
- Philip Mckinstry — Trustee (departed 2017-12-12)
- David Palmer — Trustee (departed 2019-04-20)
- Jennifer Noble — Secretary/treasurer (departed 2011-07-01)
- John Forman — Chair
- Dianne Webster — Trustee (departed 2015-12-10)
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The New Zealand Lysosomal Storage Diseases Trust
Financial data as at June 2020. Sourced from Charities Services register.
This charity has been removed from the Charities Services register and is no longer obliged to file annual returns. Because the charity is no longer active under the Charities Act, the standard rating is withheld. The figures shown above reflect the last filings made while the charity was registered.
How ratings work →$27.9K
$50.0K
$38.5K
Financial data from Charities Services annual return (FY2020). Ratings calculated using CharityData v3.1.1 methodology.
Funder Profile
GrantmakerThis organisation makes grants or donations to other charities and organisations.
About
To improve contacts information and support among people affected by Lysosomal Storage Diseases, and their families within New Zealand, To support and advocate for accelerated research into the causes and treatments of Lysosomal storage diseases, and or improvements to the clinical care of affected people. To build links with overseas families, support groups to support knowledge about theses diseases and advance the objectives of the trust. To promote education of families, clinicians and others involved in the care of affected people and their families. To support and advocate for the establishment of medical testing screening, other specialist services.
Key Statistics
Financial Trends
Financial Trends (12 Years)
Revenue Breakdown
Expense Breakdown
API DataBased on annual return data. Detailed program/admin breakdown not available.
Financial Health Dashboard
Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology
Revenue Diversification
HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.
Peer Comparison
Ranked against 226 peers · Health · Under $100K
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Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 11 September 2026.
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