The Rare Disorders New Zealand Trust — Health Charity in Wellington
The Rare Disorders New Zealand Trust is a Trust charity in the Health sector, based in Wellington, Wellington. Annual revenue: $0.4M NZD. Financial data as at June 2025.
Mission: To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.
- Registration Number
- CC22512
- Charity Type
- Trust
- Registration Date
- 2008-04-03
- Status
- Active
- Sector
- Health
- Location
- Wellington, Wellington
- accounts@raredisorders.org.nz
- Data as at
- June 2025
Beneficiaries: Other - All
Financial Summary
- Total Revenue
- $0.4M NZD
- Total Expenses
- $0.6M NZD
- Total Assets
- $0.5M NZD
- Net Assets
- $0.3M NZD
- Reserve Months
- 0.0 months of operating expenses
- Staff Count
- 9
- Volunteers
- 0
- Financial Year End
- 2025-06-30
Financial History
| Year | Revenue | Expenses | Net Assets |
|---|---|---|---|
| 2025 | $0.4M | $0.6M | $0.3M |
| 2024 | $0.5M | $0.5M | $0.4M |
| 2023 | $0.5M | $0.4M | $0.4M |
| 2022 | $0.3M | $0.3M | $0.4M |
| 2021 | $0.3M | $0.2M | $0.3M |
| 2020 | $0.3M | $0.2M | $0.2M |
| 2019 | $0.3M | $0.3M | $0.2M |
| 2018 | $0.3M | $0.3M | $0.2M |
| 2017 | $0.3M | $0.3M | $0.2M |
| 2016 | $0.3M | $0.2M | $0.2M |
Board Members and Officers
Current Officers (0)
| Name | Role | Appointed |
|---|
Former Officers (27)
- Nivedita Sharma Vij — Trustee
- Samantha LaHood — Trustee
- Ariane Tuapola — Chair
- Christopher Higgins — Chief Executive
- Awhina Hollis-English — Trustee
- Gillian Greer — Trustee (departed 2021-09-22)
- James McGoram — Trustee
- Rosemary Marks — Trustee
- Sue Wells — Trustee (departed 2018-10-18)
- Carol Gernhoefer — Trustee (departed 2024-09-26)
- BICE AWAN — Trustee
- Joanna Lusk — Trustee (departed 2022-03-14)
- Chris Higgins — Trustee (departed 2018-06-14)
- Gill Greer — Trustee (departed 2014-09-06)
- Stephen Robertson — Trustee (departed 2024-06-27)
- Lucy Elwood — Trustee (departed 2016-12-20)
- Richard MacManus — Trustee (departed 2014-03-24)
- Gillian Deane — Trustee (departed 2014-07-05)
- Anita Nicholls — Trustee (departed 2013-05-16)
- Bronwyn Gray — Trustee (departed 2020-03-09)
Funding Sources
- Lion Foundation — $30,000
- Kiwi Gaming Foundation Limited — $16,831.13
- Trust House Foundation — $13,600
- Aotearoa Gaming Foundation — $13,260
- Foundation North — $10,000
- One Foundation — $10,000
- Foundation North — $10,000
- Foundation North — $10,000
- The Lion Foundation — $10,000
- Pub Charity Limited — $9,857.46
- Aotearoa Gaming Foundation — $9,600
- Grassroots Trust Central Limited — $8,040
- Trust House Foundation — $5,000
- Kiwi Gaming Foundation Limited — $5,000
- Pelorus Trust — $2,691.31
- Blue Sky Community Trust — $2,000
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The Rare Disorders New Zealand Trust
Financial data as at June 2025. Sourced from Charities Services register.
Charities Services Tier 3 reporting allows charities under $2M revenue to file a simple-format annual return rather than audited financial statements. The return reports totals but not the program/administration split or the line-item detail our template needs. No red flags were detected in what was filed, and revenue is below the $2M Tier 2 boundary where audited accounts become mandatory. A letter grade is withheld rather than assigning one that would be driven by the template-fit, not the charity's operations. The charity's filed figures are shown above, and any structural concerns a donor would want to look at are surfaced separately. (v3.3 — aligned with Charities Services tier boundary; matches Charity Navigator and CharityWatch US practice.)
How ratings work →$433.2K
$576.2K
$491.2K
9
Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.
Funded By
Registered charities that have funded this organisation.
About
To champion and amplify the collective voice of New Zealanders with rare disorders, advocating for access to world class and world leading health, disability, education and other services.
Who We Serve
Key Statistics
Financial Trends
Financial Trends (17 Years)
Revenue Breakdown
Expense Breakdown
API DataBased on annual return data. Detailed program/admin breakdown not available.
Financial Health Dashboard
Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology
Revenue Diversification
HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.
Peer Comparison
Ranked against 157 peers · Health · $100K – $1M
Top Peers in Group
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Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 28 September 2026.
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