New Zealand Dystonia Patient Network Incorporated — Health Charity in Orewa
New Zealand Dystonia Patient Network Incorporated is a deregistered Trust charity in the Health sector, based in Orewa, Orewa. This organisation also provides funding to other charities. Annual revenue: $0.0M NZD. Financial data as at March 2025.
Mission: i To inform, educate, support, and provide facilities for, persons with Dystonia, and the families, whanau, and caregivers of people with Dystonia. ii To promote public awareness of Dystonia and the Society. iii To encourage and to provide opportunities for persons and corporate bodies within New Zealand to take an active interest in all aspects of Dystonia.
- Registration Number
- CC10565
- Charity Type
- Trust
- Registration Date
- 2007-07-05
- Status
- Deregistered (2025-07-18)
- Sector
- Health
- Location
- Orewa, Orewa
- nzdystoniapatientnetwork@gmail.com
- Funder Status
- Grant-making charity (society)
- Data as at
- March 2025
Financial Summary
- Total Revenue
- $0.0M NZD
- Total Expenses
- $0.0M NZD
- Reserve Months
- 0.0 months of operating expenses
- Volunteers
- 0
- Financial Year End
- 2025-03-31
Financial History
| Year | Revenue | Expenses | Net Assets |
|---|---|---|---|
| 2025 | $0.0M | $0.0M | - |
| 2024 | $0.0M | $0.0M | - |
| 2023 | $0.0M | $0.0M | - |
| 2022 | $0.0M | $0.0M | - |
| 2021 | $0.0M | $0.0M | - |
| 2020 | $0.0M | $0.0M | - |
| 2019 | $0.0M | $0.0M | - |
| 2018 | $0.0M | $0.0M | - |
| 2017 | $0.0M | $0.0M | - |
| 2016 | $0.0M | $0.0M | - |
Board Members and Officers
Current Officers (5)
| Name | Role | Appointed |
|---|---|---|
| Anna Nelson | Committee Member | 2023-06-17 |
| Dave Mitchell | Committee Member | 2018-05-01 |
| Jayne Lewington Lovell | Committee Member | 2016-05-07 |
| Alison Fitzpatrick | Chair | 2014-07-31 |
| Desiree Sargon | Secretary | 2012-05-11 |
Former Officers (25)
- Julie Hooke — Committee Member (departed 2024-06-03)
- Kylie Tremain — Committee Member (departed 2024-12-09)
- Gay Carruthers — Committee Member (departed 2021-06-16)
- Elizabeth McPherson — Committee Member (departed 2021-06-18)
- Barbara Hampton — Vice Chairperson (departed 2017-06-17)
- Pauline Granich — Committee Member (departed 2017-10-03)
- Jayne Llovell — Committee Member (departed 2016-06-20)
- Alex Weir — Committee Member (departed 2016-05-07)
- Philippa Hooper — Network Manager (departed 2019-08-05)
- David Barton — Treasurer (departed 2023-06-30)
- Kevin Tansley — Deputy Chairperson (departed 2014-07-31)
- Chris Spooner — Treasurer (departed 2014-07-31)
- Linda Jones — Treasurer (departed 2013-05-16)
- Shirley Henderson — Committee Member (departed 2013-11-17)
- David Mitchell — Chair (departed 2014-05-17)
- Dorothy Hughes — Exec Committee Member (departed 2011-11-02)
- Roger Terry — Committee Member (departed 2020-03-18)
- Jan Mc Cabe — Exec. Committee (departed 2013-05-04)
- Philipa Hooper — Executive Committee Member (departed 2015-07-23)
- Naomi Knight — Committee National (departed 2008-04-01)
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New Zealand Dystonia Patient Network Incorporated
Financial data as at March 2025. Sourced from Charities Services register.
This charity has been removed from the Charities Services register and is no longer obliged to file annual returns. Because the charity is no longer active under the Charities Act, the standard rating is withheld. The figures shown above reflect the last filings made while the charity was registered.
How ratings work →$1.5K
$12.7K
Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.
Funder Profile
GrantmakerThis organisation makes grants or donations to other charities and organisations.
About
i To inform, educate, support, and provide facilities for, persons with Dystonia, and the families, whanau, and caregivers of people with Dystonia. ii To promote public awareness of Dystonia and the Society. iii To encourage and to provide opportunities for persons and corporate bodies within New Zealand to take an active interest in all aspects of Dystonia.
Key Statistics
Financial Trends
Financial Trends (18 Years)
Revenue Breakdown
Financial Health Dashboard
Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology
Revenue Diversification
HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.
Peer Comparison
Ranked against 232 peers · Health · Under $100K
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Sector & Activities
Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 15 September 2026.
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