Fragile X New Zealand TrustSocial Services Charity in Nelson

Fragile X New Zealand Trust is a Trust charity in the Social Services sector, based in Nelson, Nelson. This organisation also provides funding to other charities. Annual revenue: $0.0M NZD. Financial data as at March 2025.

Mission: Our purpose is to provide support, information and services to individuals, parents/whānau and communities affected by fragile X; to raise awareness and understanding of fragile X and associated conditions; and to highlight the benefits of a fragile X diagnosis

Registration Number
CC25998
Charity Type
Trust
Registration Date
2008-06-16
Status
Active
Sector
Social Services
Location
Nelson, Nelson
Email
info@fragilex.org.nz
Funder Status
Grant-making charity (trust)
Data as at
March 2025

Financial Summary

Total Revenue
$0.0M NZD
Total Expenses
$0.0M NZD
Reserve Months
0.0 months of operating expenses
Staff Count
1
Volunteers
0
Financial Year End
2025-03-31

Financial History

YearRevenueExpensesNet Assets
2025$0.0M$0.0M-
2024$0.0M$0.0M$0.0M
2023$0.0M$0.0M$0.0M
2022$0.0M$0.0M$0.1M
2021$0.0M$0.0M$0.0M
2020$0.0M$0.1M$0.0M
2019$0.1M$0.0M$0.0M
2018$0.0M$0.0M$0.0M
2017$0.0M$0.0M$0.0M
2016$0.0M$0.0M$0.0M

Board Members and Officers

Current Officers (6)

NameRoleAppointed
Nicola SlaterSecretary2022-12-06
Judith PaniChair2018-05-05
Louise SmithTreasurer2018-04-06
Raymond DickinsonTrustee2018-04-06
Andrea LeeExecutive Director2015-03-31
Lance NormanTrustee2012-03-27

Former Officers (8)

  • Bronwyn MarkeySecretary (departed 2023-11-23)
  • Nicola CuthbertsonTrustee (departed 2018-05-05)
  • Jayne SorensonTrustee (departed 2015-08-23)
  • Barbara ShelleyTrustee (departed 2009-11-02)
  • Christopher HollisTrustee (departed 2019-09-15)
  • Senorita LaukauTrustee (departed 2019-09-15)
  • Judith-Ann SpierSecretary (departed 2018-03-31)
  • Anita NichollsChair (departed 2009-11-02)

Similar Charities in Social Services

FunderSocial ServicesTrustTrust

Fragile X New Zealand Trust

CC25998Nelson, NelsonRegistered 16 Jun 2008
Data updated: 1 Sept 2026
Financials31 Mar 2025Rating11h ago

Financial data as at March 2025. Sourced from Charities Services register.

NR
Not ratedCharity type not yet classified — grade withheld

Our scorecard uses a different template for different kinds of charity — an operating charity is measured differently from an endowment or a grant-making trust. This charity's type has not yet been classified, so a letter grade is withheld rather than assigned using a template chosen by default. That says nothing about the charity itself. Its filed figures are shown above, and it will be graded once its type is classified.

How ratings work →
Revenue

$30.7K

Expenses

$26.5K

Staff

1

Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.

Funder Profile

Grantmaker

This organisation makes grants or donations to other charities and organisations.

Funding Sectors
Social Services
Beneficiaries
Māori
Geographic Focus
Nelson

About

Mission

Our purpose is to provide support, information and services to individuals, parents/whānau and communities affected by fragile X; to raise awareness and understanding of fragile X and associated conditions; and to highlight the benefits of a fragile X diagnosis

Key Statistics

Annual Revenue
$30.7K
Total Expenses
$26.5K
Net Assets
-
Staff
1
employees
Volunteers
0

Financial Trends

Financial Trends (17 Years)

Revenue Breakdown

Expense Breakdown

API Data

Based on annual return data. Detailed program/admin breakdown not available.

Financial Health Dashboard

Cents to the Cause
100c
For every $1 spent, 100c reaches programs
Strong
Sustainability
11.4mo
Could operate 11.4 months with zero revenue
Healthy
Fundraising Cost
-
No fundraising data
No data

Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology

Revenue Diversification

21
Score /100
Highly Concentrated
HHI: 7,873
High Concentration: 88% of revenue from Other
Other87.9%
Donations12.1%

HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.

Peer Comparison

Ranked against 311 peers · Social Services · Under $100K

Rating Score
0
#111/312
Revenue
$31K
#103/312
Reserve Months
0.0
#1/312
Surplus
$4K
#83/312
Staff Cost %
93%
#312/312

Peers are charities in the same sector and revenue size band. Rankings are based on the latest available data.

Rating

Score: /100
Financial
0
Governance
30
Transparency
65
View Full Score Breakdown

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Contact Details

Address
Nelson, Nelson

Registration

Registration NumberCC25998
Entity TypeTrust
Registered16 Jun 2008
StatusRegistered

Companies Office

StatusRegistered
Entity TypeCharitable Trust
Incorporated7 Nov 2000
Registered office
196 Taita Drive, Avalon, Lower Hutt
Differs from Charities Register address (8 Blampied Place, , Nelson South, Nelson, 7010, Nelson, Nelson). May be stale on either register — verify with the charity if material.

Sector & Activities

Primary Sector
Social Services

Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 11 September 2026.