Ehlers-Danlos Society New Zealand IncorporatedHealth Charity in Auckland

Ehlers-Danlos Society New Zealand Incorporated is a Trust charity in the Health sector, based in Auckland, Auckland. This organisation also provides funding to other charities. Annual revenue: $0.0M NZD. Financial data as at March 2025.

Mission: Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Registration Number
CC55826
Charity Type
Trust
Registration Date
2018-06-12
Status
Active
Sector
Health
Location
Auckland, Auckland
Email
Kelly@ehlers-danlos.org.nz
Funder Status
Grant-making charity (society)
Data as at
March 2025

Financial Summary

Total Revenue
$0.0M NZD
Total Expenses
$0.0M NZD
Reserve Months
0.0 months of operating expenses
Volunteers
0
Financial Year End
2025-03-31

Financial History

YearRevenueExpensesNet Assets
2025$0.0M$0.0M-
2024$0.0M$0.0M$0.0M
2023$0.0M$0.0M$0.0M
2022$0.0M$0.0M$-0.0M
2021$0.0M$0.0M$0.0M
2020$0.0M$0.0M$0.0M
2019$0.0M-$0.0M

Board Members and Officers

Current Officers (5)

NameRoleAppointed
Annabell YoungCommittee Member2024-08-20
Grace BlackettSecretary / Committee Member2024-08-08
Sarah TeareCommittee Member2022-08-11
Wendy FairsCommittee Member2021-09-01
Kelly McQuinlanCo Founder / President / Cvo2018-05-01

Former Officers (15)

  • Jasmine TurnerCommittee Member (departed 2023-04-01)
  • Nikita (Nikki) Van DykCommittee Member (departed 2024-08-24)
  • Peter BourgeoisCommittee Member (departed 2022-02-12)
  • Fleur BourgeoisCommittee Member (departed 2022-02-12)
  • Sharleen BighamCommittee Member (departed 2021-10-04)
  • Tara ApperleyTreasurer/committee Member (departed 2024-10-23)
  • Jennifer SaundersCommittee Member (departed 2024-07-04)
  • Natalie DudleyCommittee Member (departed 2020-03-11)
  • Kylie BurlingCommittee Member (departed 2022-09-23)
  • Angela DesmaraisCommittee Member (departed 2021-04-14)
  • Alli JacksonCommittee Member (departed 2022-01-01)
  • Pamela BuckinghamCommittee Member (departed 2020-09-09)
  • Ben CremerOfficer (departed 2019-07-01)
  • Lisa PrestonTreasurer/officer (departed 2020-05-20)
  • Stephanie AstonSecratary (departed 2019-07-15)

Similar Charities in Health

FunderHealthTrustSociety

Ehlers-Danlos Society New Zealand Incorporated

CC55826Auckland, AucklandRegistered 12 Jun 2018
Data updated: 1 Sept 2026
Financials31 Mar 2025Ratingyesterday

Financial data as at March 2025. Sourced from Charities Services register.

NR
Not ratedCharity type not yet classified — grade withheld

Our scorecard uses a different template for different kinds of charity — an operating charity is measured differently from an endowment or a grant-making trust. This charity's type has not yet been classified, so a letter grade is withheld rather than assigned using a template chosen by default. That says nothing about the charity itself. Its filed figures are shown above, and it will be graded once its type is classified.

How ratings work →
Revenue

$11.4K

Expenses

$5.9K

Financial data from Charities Services annual return (FY2025). Ratings calculated using CharityData v3.1.1 methodology.

Funder Profile

Grantmaker

This organisation makes grants or donations to other charities and organisations.

Funding Sectors
Health
Beneficiaries
General Public
Geographic Focus
Nationwide

About

Mission

Our mission is to improve the wellbeing of those with Ehlers-Danlos Syndromes/Hypermobility Spectrum Disorders in Aotearoa New Zealand by raising awareness, improving knowledge by health professionals and providing support to patients.

Key Statistics

Annual Revenue
$11.4K
Total Expenses
$5.9K
Net Assets
-
Volunteers
0

Financial Trends

Financial Trends (7 Years)

Revenue Breakdown

Expense Breakdown

API Data

Based on annual return data. Detailed program/admin breakdown not available.

Financial Health Dashboard

Cents to the Cause
94c
For every $1 spent, 94c reaches programs
Strong
Sustainability
0mo
Could operate 0 months with zero revenue
Critical
Fundraising Cost
$0.03
Costs $0.03 to raise each $1 in donations
Efficient

Based on latest annual return data. Metrics are calculated from reported financial data and may not reflect the full picture. View methodology

Revenue Diversification

9
Score /100
Highly Concentrated
HHI: 9,060
High Concentration: 95% of revenue from Donations
Donations95.1%
Other3.8%
Investment Income1.1%

HHI (Herfindahl–Hirschman Index) measures concentration across 6 income categories. Lower HHI = more diversified. Score above 60 indicates healthy diversification.

Peer Comparison

Ranked against 235 peers · Health · Under $100K

Rating Score
0
#47/236
Revenue
$11K
#147/236
Reserve Months
0.0
#1/236
Surplus
$6K
#66/236
Staff Cost %
13%
#236/236

Peers are charities in the same sector and revenue size band. Rankings are based on the latest available data.

Rating

Score: /100
Financial
0
Governance
30
Transparency
65
View Full Score Breakdown

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Contact Details

Address
Auckland, Auckland

Registration

Registration NumberCC55826
Entity TypeTrust
Registered12 Jun 2018
StatusRegistered

Companies Office

StatusRegistered
Entity TypeIncorporated Society
Incorporated22 May 2018
Registered office
21a Alexander Avenue, Torbay, Auckland, 0630

Sector & Activities

Primary Sector
Health

Data sourced from Charities Services register and publicly available annual returns. Our datasets may not be complete. Automated analysis can produce errors. Scores are calculated using disclosed methodology and are analytical tools, not investment ratings or recommendations. If you believe any data on this page is incorrect, please contact us at hello@charitydata.co.nz. For informational purposes only. Not investment advice. Last updated: 12 September 2026.