{"@context":"https://schema.org","@type":"NGO","schema_version":"1.0","identity":{"name":"Cure ECHS1D Aotearoa Charitable Trust","slug":"cure-echs1d-aotearoa-charitable-trust","charities_register_number":"CC62797","nzbn":null,"status":"registered","registration_date":"2024-10-16","deregistration_date":null,"entity_type":null,"sector":"Health","icnpo_group":"Health","region":"Richmond","city":"Richmond","country":"NZ","financial_year_end":null,"ird_donee_status":true,"operates_overseas":null,"website":null,"purpose":"The purpose of the Trust is to promote the prevention or control of diseases caused by ECHS1D deficiency. ECHS1D is an under researched genetic disorder which causes early onset neurodegeneration in babies.  The disease is prevalent in  Maori and Pacifica people.","mission":"The purpose of the Trust is to promote the prevention or control of diseases caused by ECHS1D deficiency. ECHS1D is an under researched genetic disorder which causes early onset neurodegeneration in babies.  The disease is prevalent in  Maori and Pacifica people."},"rating":{"rated":false,"grade":null,"score":null,"status":"community_group","reason":"Small community organisation — the scorecard is not designed for entities at this scale.","methodology_url":"https://charitydata.co.nz/charity-insights/methodology"},"red_flags":{"count":0,"types":[],"descriptions":[],"note":"Flags describe metrics that fall outside published methodology thresholds for this charity’s size and type. They are analytical observations about filed data, not findings of wrongdoing."},"financials_latest":{"year_ended":"2025-03-31","total_revenue_nzd":65260,"total_expenses_nzd":1352,"surplus_deficit_nzd":63908,"total_assets_nzd":63908,"total_liabilities_nzd":null,"net_assets_nzd":null,"cash_reserves_nzd":63908,"government_grants_nzd":null,"donations_nzd":65260,"staff_costs_nzd":null,"paid_staff":null,"volunteers":0,"reporting_tier":null,"financial_report_audited":null,"source_filing_pdf":"https://register.charities.govt.nz/Document/DownloadPdf?pdfType=AnnualReturnSummary&relatedId=bff0af31-bf0e-f011-bb41-0022480ffcd1&isPublic=true","consistency_warning":null},"financial_history":[{"year_ended":"2025-03-31","total_revenue_nzd":65260,"total_expenses_nzd":1352,"surplus_deficit_nzd":63908,"net_assets_nzd":null,"source_filing_pdf":"https://register.charities.govt.nz/Document/DownloadPdf?pdfType=AnnualReturnSummary&relatedId=bff0af31-bf0e-f011-bb41-0022480ffcd1&isPublic=true"}],"group_consolidated":null,"governance":{"current_officers":5,"total_officers_recorded":5,"chair_recorded":false,"paid_executives_disclosed":0,"executive_remuneration_bands":[],"auditor_firm":null,"latest_audit_opinion":null,"going_concern_referenced":false,"individuals_named":false,"individuals_note":"Officer and trustee names are deliberately omitted from this machine-readable view. They are public on the Charities Register and on the charity profile page."},"funders":{"named":[],"unnamed_count":0,"unnamed_note":"Funding sources that may be individuals, or whose type is unclassified, are counted but not named."},"service_providers":[],"links":{"profile":"https://charitydata.co.nz/charities/cure-echs1d-aotearoa-charitable-trust","markdown":"https://charitydata.co.nz/api/v1/charities/cure-echs1d-aotearoa-charitable-trust/markdown","summary_md":"https://charitydata.co.nz/api/v1/charities/cure-echs1d-aotearoa-charitable-trust/summary.md","methodology":"https://charitydata.co.nz/charity-insights/methodology","official_register":"https://register.charities.govt.nz/CharitiesRegister/ViewCharity?accountId=CC62797","website":null},"freshness":{"register_as_of":"2026-10-01","financials_updated":"2026-04-25","rating_computed":"2026-10-01","generated_at":"2026-10-03T15:43:53.472Z","note":"Figures are as filed. A charity that has filed since the dates above may have newer numbers on the Charities Register."},"attribution":{"publisher":"CharityData NZ","publisher_url":"https://charitydata.co.nz","primary_source":"Charities Services (Ngā Rātonga Kaupapa Atawhai), Department of Internal Affairs","licence":"CC BY 4.0 with attribution to CharityData NZ and Charities Services","disclaimer":"Analytical scores are CharityData’s own, computed under a published methodology from the charity’s own filings. They are not financial, legal or donation advice."}}